Local albinism foundation appeals for assistance with sunscreen and spectacles
Melokuhle Albinism Foundation also intends to raise awareness about albinism next month and is seeking funding for this endeavour.
The Melokuhle Albinism Foundation is reaching out to the public and organisations for assistance in providing essential care items for people living with albinism.
With a mission to make a significant difference in the lives of those affected by albinism, the foundation is calling for support to ensure individuals with albinism have access to proper sunscreen and spectacles.
Albinism is a hereditary disorder that affects melanin production, leaving individuals with little to no protection from the sun’s harmful UV rays, which can lead to various skin conditions and eye problems.
Tryphina Nhlapho, the founder of the Melokuhle Albinism Foundation, who herself has albinism, emphasised the need for better-quality sunscreen that is suitable for the sensitive skin of people living with albinism.
She said, “We need a sunscreen cream with a high SPF of 50+ that can also moisturise the skin and is water-resistant. Clinics provide sunscreen creams, but they often cause our skin to become dry and flaky.”
Tryphina also highlighted the financial challenges faced by many individuals with albinism.
“The few people with albinism who can afford it acquire their sunscreen from retail stores, which is rather expensive.
We need assistance to ensure that everyone has access to suitable sunscreen.”
In addition to sunscreen, the foundation is also seeking support to provide spectacles for young individuals with albinism.
Tryphina explained, “Spectacles are essential for many young people with albinism, but they are very expensive, and many parents cannot afford them.”
The Melokuhle Albinism Foundation currently caters to over 50 people living with albinism, and they are calling on the government to provide funding for research into the development of safe and effective sunscreen products for people with albinism.
Tryphina advised, “Try to stay in the shade as much as possible. Cover up with clothing that has SPF protection.
Always wear a hat, especially when walking in the sun. Always check your skin for changes or suspicious marks.”
For those willing to make donations to the foundation or offer assistance, they can contact Tryphina at 082 796 1582.
The foundation also plans to raise albinism awareness next month and is seeking funds for this initiative.
Do you have a story to share?
Please send us an email to info@witbanknews.co.za or phone us on 013 656 2490
- For more breaking and community news, visit Witbank News’
- For more news and articles, like WITBANK NEWS on Facebook, Twitteror Instagram
DID YOU KNOW?
Click on the words highlighted to read more on this and related topics.
