Family chooses hope for Hayley
According to the Muscular Dystrophy Foundation of South Africa, muscular dystrophy is the name given to a group of more than 70 different neuromuscular disorders causing progressive wasting and weakness of the muscles.
September is International Muscular Dystrophy Awareness Month. Hayley Halloway’s (11) life changed in the blink of an eye, and her family is taking it in stride.
“I started to notice that she had a hard time standing up. Especially when she was sitting on the floor. And when she got into the car, she would lift her legs with her hands,” explains Leonie Halloway, Hayley’s mother.
On a hunch, Leonie decided to take videos of Hayley performing certain tasks to seek professional help. Initially, the mother of two sent the footage to a friend who is a physiotherapist.
“My friend showed the videos to some of her colleagues, and they all agreed that we should see a paediatrician as soon as possible.”
A paediatrician then referred them to a specialist in the field.
“It was January 23, I will never forget that day. The professor confirmed that Hayley has muscular dystrophy,” said Leonie.
According to the Muscular Dystrophy Foundation of South Africa, muscular dystrophy is the name given to a group of more than 70 different neuromuscular disorders causing progressive wasting and weakness of the muscles.
Each type presents differently and with its levels of complexity.
They are characterised primarily by progressive muscle weakness, leading to secondary effects such as fatigue, increasingly limited physical activity, impaired balance and often collapsing.
“The past few months have been especially challenging because her mobility her been severely restricted. She used to love running and playing netball and hockey.”
She said Hayley has had to slow down because she falls quite often, as her muscles are weakened.
“We still choose to look on the bright side of life. I call it differently abled, instead of disabled. It is mind-blowing how she adjusts to getting things done now.
“People who live with certain physical limitations have to think outside the box,” she added.
Hayley also participated in the Uniquely Me Pageant on September 2.
“She loved it. I didn’t expect her to participate, but she had the time of her life,” Leonie exclaimed.
ALSO CHECK: Springs Central Fire Station building in need of some TLC
The family started Hope For Hayley NPC to raise awareness about muscular dystrophy, and to help raise funds for Hayley’s medical bills.
They will host a charity day, in partnership with the Muscular Dystrophy Foundation of South Africa, on September 30, at Zonskyn Tea Garden & Event Venue.
For more information on the event and Hayley’s journey follow them on Facebook; Hope For Hayley NPC.
“My deepest wish for Hayley is that she will remain courageous and hopeful. And that her dream of becoming a wildlife veterinarian will come true,” said Leonie.
