Learn more about rare diseases
CRAIGHALL PARK – Rymer said that there is a great need for medical research, which is why creating awareness is key.
Did you know that in South Africa there are 4.1 million people living with a rare disease?
Craighall Park resident, rare diseases ambassador and online fitness company owner Farrah Rymer is passionate about people living their healthiest life.
“It’s devastating knowing that there are so many suffering with a rare disease every single day,” said Rymer.
“Many people are ill and undiagnosed. Those that are undiagnosed often don’t have a cure. Less than 5% of the 7 000 rare diseases can be treated.”
Rymer said there was a great need for medical research, which was why creating awareness was key.
As a rare diseases ambassador, Rymer is passionate about making a difference in the lives of others by not only creating awareness on social media but also helping others in a hands-on way.
February 28 is Rare Diseases Day and an opportunity for the public to join the #LightUpForRare campaign. Locals can light up their home, school, church or business at 19:00 on February 28 and shine a beacon to show their solidarity and help to raise awareness.
Locals can also join the annual Denim Walk on February 26, donate to Rare Diseases South Africa or follow their campaign on social media @rarediseasessa to learn more.
Details: Email events@rarediseases.co.za
ALSO READ:
Resident needs help to raise funds for her son’s medical treatment
