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Lukas needs your help to beat unknown medical condition

Sadly, his medical condition is still undiagnosed and further tests will be carried out soon.

 

Four-year-old Lukas Etsebeth from Roodekrans was born a normal and healthy baby, but at the age of four months, his significant medical condition surfaced, involving a convoy of complications that left him drowsy and unresponsive.

After many hospital admissions and according to the best paediatricians, neurologists and specialists, Lukas’ condition is an interesting case and a challenge to diagnose.

Baby Lukas Etsebeth. Photo: Supplied.

His blood samples were sent to the UK and the Netherlands to test for congenital disorders of glycosylation, but the results came back with nothing detected.

The latest MRI scan showed that the tumour on his vertebrae did not pose any dangers, however it was found that his small brain has never developed.

Lukas cannot crawl, walk or talk and he also chokes a lot while feeding. His gross motor development is also delayed and not what it should be at his age.

He urgently needs to attend physiotherapy, speech therapy, and occupational therapy sessions on a regular basis and he also needs to go for more Botox treatments, as well as MRI and CAT scans.

Sadly, his medical condition is still undiagnosed and further tests will be carried out soon.

The Etsebeth family would greatly appreciate the help of the community and local businesses in their journey to help their child.

For more information, please contact Janine Etsebeth on 084 240 6486 or follow their Facebook page, at https://www.facebook.com/koosenjanineetsebeth/.

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