VIDEO: Randpark Golf Club player with Wilson’s disease finds renewed hope
RANDPARK – Local aspiring golfer does not give up after being diagnosed with Wilson's disease.
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It took a while for Jonathan Rae (25) to accept his diagnosis of Wilson’s disease, but once he did he could continue following his golfing dream.
Rae was a mechanical engineering student and always dreamed of playing golf professionally.
The Randpark Golf Club member planned to go pro in April last year, but it was around that time he was diagnosed with the rare genetic disorder that causes copper poisoning in the body.
The disease affects one in 30 000 people globally and neurological symptoms include trouble speaking and physical tremors.
This affected Rae’s studies and he had to leave university two years into his degree.
A golf player since 13, Rae had worked his handicap down to plus two and had competed in the SA Open qualifiers three times, reaching the top 200 in the amateur rankings.
He had hoped to join the Sunshine Tour and get some experience before attempting the European Tour Q-School.
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He initially did not accept his diagnosis and avoided researching the disease for months. But his biggest challenge became making it through each day. Speaking clearly, grooming daily, and often relying on his girlfriend to feed him are just a few of the difficulties he faces.
“When I started to come to terms with what I’ve got, I basically had to decide whether I wanted to fight it or just lie down and die. The disease has taught me not to take anything for granted. At my last competitive round of golf, I shot a 68. Three months later I couldn’t even open a bottle.”
Rae joined Randpark Golf Club and said it became like a supportive family. He found a way to play golf despite his shaking hands.
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“[The disease] only really affects your short game. The long game is more strength than finesse.”
Rae has since renewed his golfing aspirations. Furthermore, he views golf as a platform to give back to charities and underprivileged children, and plans on raising awareness of his disease through golf.
Club general manager, Francois Swart said, “We are delighted to have Jonathan as a member of our club and will provide him with all the support he may need to achieve his goals and dreams.”
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