The Rare Disease Society of South Africa is calling on the general public to care for South Africans who have a rare disease.
An estimated that 350 million people worldwide suffer from rare diseases and there are approximately 7000 different types of rare diseases and disorders, with more being discovered each day.
Rare Disease Day was first launched in 2008, and is held on 28 February annually across the globe.
This year’s care themed Rare Disease Day encourages everyone in the rare-disease community to join together for better care.
You can support the society’s work by donating R10 to buy a ‘Jeans for Genes’ denim ribbon from selected stores countrywide and wearing the ribbon and your favourite pair of jeans on 28 February, or SMS Rare to 38232 to help raise funds for better care.
Oscar von Memerty has been chosen as the face of the 2014 campaign.
The 18-year-old hip hop dancer and motivational speaker has overcome serious physical challenges as a result of his rare medical condition, MPS VI (Maroteaux Lamy Syndrome), which is characterised by dwarfism, among other symptoms.
Von Memerty shares his incredible story of courage and raises awareness about rare diseases and their impact on patients’ lives as well as the necessity for timeous treatment.
Make your pledge now and make Friday 28 February 2014 your Jeans for Genes day.
Details: 011 706 9600, www. rarediseases.co.za, facebook.com/Rare Disease Day 2014 – South Africa
