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HACT commemorates Hospice Week

The Hilllcrest AIDS Centre Trust shared a moving story of one of its patients as they marked Hospice Week.

FIFTY three year old Bongi, from Shongweni, was one of the 76 palliative patients that passed away in the Hillcrest AIDS Centre Trust’s (HACT) Respite Unit in 2017.

She was one of the patients remembered during Hospice Week from 6 to 13 May.

Bongi, who died of lung cancer on 4 May 2017, was sadly still awaiting her first chemotherapy appointment.

Having personally nursed and cared for Bongi during her last days, HACT Nurse, Nokuphila Kanyile still remembers her fondly. “Even though she knew she was dying, Bongi was very strong. She didn’t want her children to see her suffering.”

Sparing young children from the trauma of trying to care for their terminally ill parents was one of the key reasons HACT’s 24 Respite Unit was set-up more than a decade ago explained HACT’s CEO, Candace Davidson.

“HACT ran an extensive home-based care programme in the early 1990s, before ARVT treatment became available in South Africa.

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“It was through this project that our team realised the need for a dedicated Unit to provide palliative care in a controlled setting and remove this burden from ill-equipped family members. The worst case our team ever saw was a four-year-old little girl who was single-handedly trying to nurse her dying mother.”

Today, HACT’s Respite Unit provides free palliative and respite care to more than 250 patients a year who are suffering from either end-stage AIDS and or cancer.

Thanks to ARVT, and the quality care provided by HACT’s trained team of nurses and caregivers, approximately 70 per cent of its patients admitted to the unit recover to the point they can return home to their families. Thirty per cent pass away in a dignified environment surrounded by HACT’s dedicated team.

Bongi has left behind seven children who are now orphans, ranging in age from 9 to 25 years old and one three-year-old grandchild.

Her eldest daughter, Sindi, is pursuing her degree in social science through UNISA and is doing her practical work assignments through HACT’s Granny Support Groups Programme.

Speaking of her mom, Sindi said, “I still miss her every day. I’m so glad that she died here (in HACT’s Respite Unit) and was well taken care of. I’m working hard now at my studies because I want to make her proud.”

For more information on HACT and its Respite Unit, visit www.hillaids.org.za.

 

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