Bob defies the odds and continues the MND fight
At the time of his diagnosis in 2006, Bob was told he had three to five years to live.
Bob Fuller, who was diagnosed with motor neurone disease (MND) in 2006, defied the odds despite doctors’ prediction that he would only live for three to five years after his diagnosis.
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He was born in Iowa, USA, and arrived in South Africa in 1988 and never went back.
Bob came to SA to lead a programme called Youth Harvest for Youth for Christ SA (YFC). He planned to stay for a year but fell in love with this country.
In 1994 he married Nicky and they have been residents of Bedfordview ever since.
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After 16 years with YFC, Bob joined The King’s School Linbro Park in 2004 as head of student affairs.
At the time of his diagnosis in 2006, Bob was told he had three to five years to live.
Nicky said, from the start, her husband chose to trust in God. It has now been 11 years and he continues to do so.
“Bob always enjoyed life to the fullest. He kept fit and packed as much as he could into each day. Within six months of the diagnosis he stopped driving and was in a wheelchair soon after. By 2008 he needed full-time care. At this stage he is unable to do anything with his body. He is unable to speak or eat,” said Nicky.
“With MND, the brain remains 100 per cent and thanks to modern technology, Bob is able to fully operate his computer with his eyes. Bob still goes to work three days a week,” she said.
When asked how he remains so upbeat, he said the alternative doesn’t bear thinking of.
Nicky said the impact of this disease on Bob, on their marriage and on their lives has been huge.
Yet, they still consider themselves fortunate and blessed.
“The support from family, friends, the school, our church and Bob’s caregivers, Vusi and Bethuel, has been phenomenal,” said Nicky.
After 11 years, the disease has taken its toll financially.
That is why Eddie Eckstein, the iconic South African comedian, who is also Nicky’s uncle, and his band, The Bats, will host a show to raise funds for Bob’s medical expenses.
The band has been together for many years and has performed to rave reviews all over the country.
The show will take place on October 27 at 8pm at The Rosebank Union Church.
Tickets are R120.
Contact Nicky on 072 362 7491 or email bnfuller@mweb.co.za
